All in all we are doing well, except for my breakdowns every now and then. Hopefully I will get more pictures on the blog soon!
Thursday, May 3, 2012
All in all we are doing well, except for my breakdowns every now and then. Hopefully I will get more pictures on the blog soon!
Monday, September 12, 2011
HAPPY 1st BIRTHDAY BRUNTON!!!!
LOOK WHO IS 1!
I can not believe that it has been a whole year since this amazing little guy entered our lives. It has been quite the roller coaster ride. Last year at this time I was unsure what the future held for us, I was afraid that I would fail this little guy. What I have found is that he has taught me what is truely important in life. He has shown me that even though he has challenges and is slower than others his age he will continue to strive to do his best with the most contagious smile on his face. He has shown me that no matter when he meets those milestones we will still be just as excited and they will mean just as much if not more! Don't get me wrong I still have my bad days when I cry because the baby in front of us is 10 months and walking, has 3 teeth and drinks from a sippy cup on his own. But I am working on it. One day at a time. So enough of my ramblings lets get to the party!
Brunton enjoyed opening his presents and had a lot of help from his big brother Coleman. Actually it worked out well because all Brunton wanted to play with was the wrapping paper, which allowed Coleman to sneak his toys away!
We went to the zoo during the day which was a lot of fun, and then had a party with family that night. Brunton loved his cake. He stuck his hands in it and flung it all over the place. He hasn't quite figured out how to put things in his mouth. His therapist wants us to work on it, but its nice to know he wont put Cole's small things in his mouth :) .
Here is so fun things about our little guy:
he is 17 lbs and 26 in long
he can sit by himself, roll faster than anyone, and has started to crawl.
he says mama, dada, and he can blow kisses, and wave
he has the power to make anyone smile even on their worst day.
he loves his brother more than anyone in the world
he trys really hard to flirt his way out of therapy
We love our little Bruntonator and can't imagine our life without him!
Sunday, July 3, 2011
Coleman's 3rd Birthday!!
He is so funny always sticking out his tongue!
Wednesday, March 16, 2011
Wondering where we have been? We have just been enjoying Holland!!! (if you don't understand, you obviously need to read our older posts:). It has been a busy couple of months so this will be a long post, but theres lots of pictures --thats a plus. I will try to go in order starting in December.
We had a wonderful Christmas, I was worried that it would be depressing since we couldn't take Brunton out, but it turned out to be really relaxing. Santa came to visit us a few days before Christmas and the boys sure loved him! Coleman was so excited he introduced Santa to all of us and then just chatted away about everything and anything!
This was my attempt to get a good picture of the two of them in front of the tree.
Here they are in their Christmas Jammies! So CUTE!
Christmas Day. All Coleman wanted was a kitchen, he spent the whole day cooking pizza for us. He also loved his cars. Brunton was just happy to watch him play. He loves to watch his brother.
Brunton in his new Bumbo chair showing off his amazing neck control and fashionable feeding tube! I am so amazed at how well he is able to hold his head up. Thank you physical therapy!
Brunton got a haircut. Look how good he sits. There are no pictures of Coleman's haircut because it took all of us to hold him in the chair!!
We went with the Hansen clan to Bear Lake in February. It was a blast we swam, ate, and snowmobiled. Coleman loved going on the snowmobile with his dad, it took all we had to convince him to get off. He was not so fond of sledding.
And Finally Brunton is 7 Months old! Can you believe it! I can't it seems like just yesterday we were sitting in the hospital coping with the unknown future that lay ahead. Now I can't imagine my life without this sweet little boy. Everything he does amazes me. Everytime he meets another milestone or does something new we are overjoyed!
Brunton now weighs 14 lbs and 1 oz. He is able to roll over, both ways, blow raspberries, say dada ( even though I tried to get him to say mama first), he gives his mom kisses (only mom!!), and he is totally smitten by his brother! He will do whatever it takes to be next to him and to get his attention. I found Coleman and Brunton lying on my bed the other day holding hands, and I overheard Coleman say that he loved Brunton and that they would be best friends forever!
So in closing if you are looking for a new adventure let me just tell you Holland is way better than any where else I have ever traveled, and I look forward to many more years here!
Tuesday, November 30, 2010
October and November updates
Wow time flies when your having fun! We have had a few busy months but I wanted to share pitures from them so lets rewind to October!
We had a great Halloween. We were busy showing off these two cute boys. "T" and I came up with the costume idea. (It was originally a pillow sold at Sportsman's). I had a lot of fun dressing the boys up. Coleman was not to excited about the whole thing, but he did enjoy the candy. (Sorry no picture of Coleman alone, he wasn't having it)
In November Brunton ended up in the hospital for a couple of days with a cold (See previous post). He did great and was out of there in 2 days. We hope not to go back again this year, or ever!
Here is a picture of Brunton'sroom. Not your typical nursery, but it could be worse. At least now we are ready for whatever comes. We have the oxygen, suction, nebulizer and pulse ox!!
Here are a couple pictures of the kids:
Don't you just love the signature "Down's tongue". So cute.
Well Brunton's had gotten out of control so he got his first hair cut. (He just didn't look as good with a comb over. Much better now. I think that it gives him personality.
THANKSGIVING 2010
We were not able to go anywhere for Thanksgiving ths year because we didn't want to risk Brunton catching anything, so we had our own. It was fun and stress free (well except the stress of cooking a turkey for the first time).
The Guests:
Very cute, but wanted nothing to do with the feast.
Requested to have hot dogs and mac and cheese (should have just skipped the turkey)
The feast!
Here is Coleman and Brunton playing in the tent that we built while awaiting the infamous storm that never really came. It was a lot of fun, we even slept in it!
* Brunton update: We met with the cardiologist yesterday and he is not happy with Brunton's weight. We talked about Brunton's aspiration pneumonia, which he thinks may be atelectasis (collapse of the lung). He has put him on a new medication to try and increase the motility in his gut so that hopefully he will start gaining weight again. He also said the words that I had been expecting and dreading SURGERY. I knew that he would more than likely have to have it, so I was suprised how those words bothered me. I see babies that have this surgery and a lot worse on a daily basis, but they aren't my baby. But as the day draws nearer I am becoming more anxious. The surgery will be at the end of January or first of February as long as we can keep him healthy. We also meet with the ENT doctor at the end of December to set a date to get ear tubes. Wow we are going to have a busy new year! He is well worth it!
Saturday, November 20, 2010
And the culprit is.....
Any way here is an update on Brunton...
I took him to the pediatrician today so that he could get his first RSV vaccine. He weighed 10 lbs 2 oz, down a little bit from last week but he has been sick. He looked good but I have noticed that he still sounds junky and no amount of suctioning has helped. I wondered if he was possibly aspirating his milk because he seems to get worse after eating and sure enough that is what is going on. After looking at an x-ray it was determined that he has the start of a right upper lobe pneumonia, which is characteristic of aspiration. The doctor is not sure whether this is a chronic thing or if it is just due to his cold. So the plan is to put him on an antibiotic and start him on prevacid for reflux and see if it clears up. If it doesn't clear up we will have to do more extensive testing to see if in fact he does this all the time. We are also putting rice cereal in his bottles to hopefully thicken them just enough to stop him from aspirating it. He will also be seeing an ENT doctor so that he can get tubes placed in his ears. Because of the down syndrome he has small ear canals and the doctors are unable to look in them to determine if he has ear infections. The ear tubes will make it so that we can see if there is drainage thus we can tell if he has an infection. So for now we are just trying to keep him healthy and happy (at least keeping him happy isn't hard!!).
As for Coleman he had an ear infection last week but is doing much better now. This kid cracks me up, he is always coming up with something funny. Right now he is on a christmas kick ( I know way to early to be talking about christmas, but I had my reasons. Coleman was terrified of Santa last year and so I wanted to prepare him early so he could enjoy the Christmas season.) Well Coleman has loved the idea of getting presents and so when the Toys R Us toy book came he was in heaven. You should see the thing it is barely holding together. He spends hours looking at page after page deciding what he wants. The kid even has to sleep with the thing!! I love to see him so excited about Christmas! The other thing I love about this kid is how much he absolutely loves his brother. When Brunton was in the hospital Coleman came to visit and the first thing that he wanted to do was climb up in the crib with his brother. After putting him next to Brunton he leans over, kisses him on the forehead and says "Brunton I missed you all day, I am so glad to see you". He was so concerned about his brother and was very upset that he had to be in the hospital. I just love these two boys. Everyday it melts my heart how much they love each other. Even Brunton will react when Cole walks in the room, or talks to him. I am very lucky to have them!!! I will post pictures soon (I need to charge the battery in my camera).
Wednesday, November 10, 2010
Blasted Respiratory season strikes our house!
Saturday, October 30, 2010
What's New?
Monday, October 18, 2010
Denial.. Not just a river in Egypt.
I have found myself wondering over the past few days if I am truley okay with the turn of events in my life or if I in fact live in a constant state of denial.I think that sometimes I put on a good show. Somedays I keep it together pretty good. But the truth is I still feel heartache, I still feel fear, I still have doubts about the future. I find that as I go about my daily activities at home with just my two kids that I can completely ignore the fact the Brunton has DS. He acts like any other newborn. He sleeps, he eats, he poops, and then he repeats it! Occasionally he will coo and stare at us with his beautiful piercing eyes and I even think we get a smile now and then. He can move his head, he holds our fingers, he cries if your not paying attention to him, and comforts the second he is held.( Yes we are already wrapped around his finger). Some days I even catch myself thinking that the genetic's test must be wrong he is doing just fine. I still dream of him doing all the "normal" things in life. I know that chances are he won't do everything that a "normal" kid will do, but I think that it gives me comfort to think that he can be whatever he wants to be. I don't think that I am quite ready to give that dream up yet. I hate to think that the doctor was right and my child will never amount to anything. So here is the honest truth, I am not 100 percent okay yet. Somedays I still cry myself to sleep, somedays I will see another baby that is "normal" and I feel the jealousy raging inside me. Someday's I want to punch the people who think that their comments are helpful, when really they just hurt. I know that I do not have it that bad, and I know that I am lucky to have such a healthy baby, but some days I feel sorry for myself, okay. Believe me I don't need to be told other people have it worse, I see it everytime I go to work.I feel like I need to be completely honest on this blog so that other people know that these feelings are normal. Someday's I feel sorry for Brunton and the struggles that he has, someday's I cry for Coleman and the fact that he will have to help care for Brunton and may be embarrassed by him at times. I worry that as he gets older he will hate me for this. Someday's I worry that I will die and there will not be enough money to support Brunton. I worry about who will help care for him, who will make sure that he is safe and protected, who will ensure that he has a roof over his head and food to eat? I feel guilty because maybe people don't think that I love him enough, or that I am a good enough mom because I do have all these feelings. I feel so guilty most of the time for being jealous of the "normal" baby, or for feeling sorry for myself. So please don't judge me, trust me I do it enough for the both of us. Understand that I will have bad days, but that I would not trade this little boy for any other baby in the world. I remember the day that I found out that I was pregnant. I was so excited, I had been having a crappy year and I didn't think that I would get pregnant so fast. I decided to test before I started a new diet just in case. It's a good thing I did. I remember how excited I was. I have always wanted to be a mom, and I knew that I wanted Coleman to have a sibling. I loved that baby from the second I found out. And I fell even more in love with him the first time I saw him. From the time when the nurse handed him to me in the delivery room until they took him to the NICU I did not let go of that little boy. So please don't ever doubt my love for him. I will do whatever it takes to give this little guy every option out there so that he can grow up and be the best at whatever it is he wants to be!!!
Brunton was blessed on 10-10-10. Pretty cool. Not only was it a cool date, it was also my moms birthday! He looked absolutely stunning in his blessing outfit, and was a really good baby all day. He was awake for the whole day, which was great, except I had a hard time waking him to feed him the next day! I think it was a little to much excitement for him. All in all it was a wonderful day!Everyday I see more and more that these two really are going to be best friends!
I was trying to put Coleman down for a nap, and he just kept insisting that he wanted to "snuggie" Brunton. Finally I gave in and laid the two of them down in my bed next to each other and Coleman wrapped both of his arms around his brother and soon they were fast asleep! I can not think of any other moment in my life that was better than this. It was so sweet how they were both cuddled in. (Don't worry after I took the picture I moved Brunton to a safer place to sleep! I didn't want him to get smashed.)
Friday, October 15, 2010
It's not what you say, It's how you say it.
Brunton 1 month old.
I just love this little boy so much!
Oh ya, remember this cutie. I can not believe how grown up Coleman is these days. He is such a clown. We are pretty sure that the school is going to have our number on speed dial for him disrupting the class. But right now we just enjoy all of his antic's. Here are a few of my favorite things about Coleman from the past few days.
Coleman is obsessed with feeding the ducks. He talks about it nonstop. It is so fun to watch him yell at the ducks to come here and get the bread. He also yells at the "eagles" (seagulls) when they steal the bread from the ducks. Another of his obsessions is tractors. He can tell you what each tractor is, its job, and what color it is. A game that he loves to play in the car is name that tractor. He will yell out from the backseat when he spots when, and then he will decide who gets it. It is almost always the same. Coleman gets any blue or green ones (sometimes orange ones), Brunton gets the yellow ones, and Mommy gets the green ones. I love seeing him learn and grow, but at the same time I am sad that soon these days will end. He is so fun to be around (don't get me wrong he has his fair share plus of melt downs), I love just having conversations with him. My favorite moment this week was when just out of the blue Cole looked at me and told me that I was his best friend! He walks around the house singing all kinds of songs and if he senses that we are having a bad day he will ask us in his tiny(sometimes high pitched voice), "Whats matter", and then say "It's ok". He is such a good boy and the best big brother. I catch him talking to Brunton all the time. He tells him all about the world and what he is doing. When Brunton cries Cole will tell him "Don't worry mommy is getting the bottle, or mommy is coming its ok." He wants to hold Brunton every second of the day, and is constantly kissing him. I think that Brunton is lucky to have him. I know that as they grow Coleman will teach him many things, of course mostly about tractors, but thats okay by me!!!









